Recent Blogs Posts

  1. Maksim's Story: 7 years after endoscopic surgery for right coronal synostosis

    Our son Maksim was born with right coronal synostosis on October 4th in 2010. But the story begins sometime earlier. In September 2009, six weeks before her expected due date, the heart of our daughter Veronika stopped beating. Despite a comprehensive examination, the doctors could not give us any conclusive explanations of what could have caused her still birth. Consequently, the following pregnancy with Maksim was full of anxiety and fear for us. Thankfully, we had Associate Professor David Schrimmer ...
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  2. Bike riding and balance

    Hi I was wondering if any of the kids had issues with their balance especially riding a bike or bouncing a ball and other sports?
    He is 11 now
    My son had right coronal synostosis

    thanks
    Jackie
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  3. The beginning of the story

    by , 11-12-2015 at 09:31 AM (Father_X, a decade later...)
    Hello all,
    My story started more than a decade ago. This is how I first described the story back then, on the "4 months anniversary of her operation" (I will add the pictures again later. They have disappeared from the forum where I initially gave regular updates on Léahs story. You can go back and read them here. I will put all the pictures here in due course).

    (13/9/2005) :

    Yesterday, it was exactly 4 months since my daughter Léah was rolled into theater ...
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  4. developmental delay?

    hi
    My son had his surgery for metopic cranio when he was 8 months old and now he is 4 and showing signs of delay than his peers. Do you think it is because of carnio? Has any of you noticed any difference?
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  5. Decisions...

    Hi everyone, I live in a small town in northern Arizona, and have been searching for a group and advice about metopic synotosis. My son has a mild-moderate metopic ridge, and so far we have done the wait-and-see approach for the past year, but it doesn't seem to be fading like we were optimistic about. It still does not, thankfully, seem to be impacting his brain development at this point. I'm just not sure if we should keep waiting or proceed with surgery- it's such an intense surgery! We have ...
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