All Blog Entries

  1. Unilateral (left) coronal synostoses

    Our 8 months old son "Virat" is diagnosed with Unilateral (left) coronal synostoses couple of months back.

    After a lot of research online and visiting many Neurosurgeons and Craniofacial surgeons, we found Dr. Jeffrey Fearon is the best doctor to treat my son. He uses best methods to treat craniosynostoses and his partners (neurosurgeons) are also best in their areas. His surgery success rates and percentage of re-surgery rate talks on behalf of him (Dr. Fearon).
  2. Lamnoid and chiari

    My son was diagnosed with Lammnoid and Chiara Malformation when he was 9 months. I had been searching for answers since 4 months. Once my husband and I found out what was wrong I found myself at this site hoping for comfort. I could not find a post regarding a child having lamnoid synostosis and found myself frustrated. My son is now 2 years old, 25 months to be exact and we could not be more pleased with the outcome of our son's surgery. I want to give comfort to all those parents going through ...

    Updated 09-24-2014 at 11:03 PM by KristalRose

  3. Nikhil's Metopic Story

    Nikhil was diagnosed with metopic and underwent surgery when he was a year old. He is 2 now and doing well. Theres still some uncertainty down the road but for now he is doing great. You can read about his journey on my blog-
  4. Forehead bossing?

    So yeah, it's rounder than most.. but that roundness makes the PERFECT spot to kiss right above the bridge of his nose, a spot made just for mommy kisses in the middle of the night. Do you know the spot I'm writing about??
    It just cups your kiss and is his favorite cuddle spot, and I mean FAVORITE. When he's all wound up, I nuzzle there and he just quiets right down, like I've fixed whatever's wrong in the world..
    A spot that I will miss with all my heart if my Zachary needs this surgery. ...
  5. Buckling Up

    8 weeks ago I gave birth to my last baby. I pushed 3 times and on that last push, after a 16 hour labor, my Zachary Bennett was born. His was a 38 week gestation after bedrest from 32 weeks- my little man wanted to see the world much too early. I should have known then that this experience would be so different from my first two babies.

    Zachary was 8 lbs 15 oz of beautiful baby boy! He was slow to cry and needed to be coaxed to breathe but as soon as he did, he perked right up. I swear, ...
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