Lamnoid and chiari

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My son was diagnosed with Lammnoid and Chiara Malformation when he was 9 months. I had been searching for answers since 4 months. Once my husband and I found out what was wrong I found myself at this site hoping for comfort. I could not find a post regarding a child having lamnoid synostosis and found myself frustrated. My son is now 2 years old, 25 months to be exact and we could not be more pleased with the outcome of our son's surgery. I want to give comfort to all those parents going through this awful situation by saying it gets better hang in there. I wish you all the best of luck and if you have any questions feel free to email me Our son had the reconstruction surgery and was not placed in helmet.

Updated 09-24-2014 at 11:03 PM by KristalRose

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