KristalRose

Lamnoid and chiari

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My son was diagnosed with Lammnoid and Chiara Malformation when he was 9 months. I had been searching for answers since 4 months. Once my husband and I found out what was wrong I found myself at this site hoping for comfort. I could not find a post regarding a child having lamnoid synostosis and found myself frustrated. My son is now 2 years old, 25 months to be exact and we could not be more pleased with the outcome of our son's surgery. I want to give comfort to all those parents going through this awful situation by saying it gets better hang in there. I wish you all the best of luck and if you have any questions feel free to email me kristalrsantos@gmail.com. Our son had the reconstruction surgery and was not placed in helmet.

Updated 09-24-2014 at 10:03 PM by KristalRose

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