Lamnoid and chiari
by, 09-24-2014 at 10:00 PM (7389 Views)
My son was diagnosed with Lammnoid and Chiara Malformation when he was 9 months. I had been searching for answers since 4 months. Once my husband and I found out what was wrong I found myself at this site hoping for comfort. I could not find a post regarding a child having lamnoid synostosis and found myself frustrated. My son is now 2 years old, 25 months to be exact and we could not be more pleased with the outcome of our son's surgery. I want to give comfort to all those parents going through this awful situation by saying it gets better hang in there. I wish you all the best of luck and if you have any questions feel free to email me email@example.com. Our son had the reconstruction surgery and was not placed in helmet.