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Helmet Therapy For tips and questions about helmet therapy.

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Old 12-21-2009, 03:25 PM   #1
Sophia's_mom
 
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Talking Sophie is helmet free!!!

Yep!!

We had our follow up in St. Louis today and as of 10:30 this morning we are DONE!!!!!!!!!!!!
Dr. Kane (PS) said he still wants to track her forehead change because it's still bossy. He started out saying we could stay in the helmet until it didn't fit anymore, but it's already almost too tight, so he said to just keep it off.
I'm so so so so so happy! It didn't really hit me until about 10 minutes after we were back on the road towards home and then I shed a few happy tears.
We don't have to go back until April 19th when they will see her for her one year follow up and do a repeat CT.
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mom to Sophie - Endo surgery 4/16/09 and Helmet Grad 12/21/09 - St. Louis Children's
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Old 12-21-2009, 03:31 PM   #2
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Think it is time for the other side Dancing Dude to come out!!!! Way to go!!!!!!!! ...I will miss seeing all of those wonderful designs you came up with for her helmet though! Your so creative!
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01/26/2009 - Jeffrey James - Metopic, Surgery June 2009, Vanderbilt
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Old 12-21-2009, 03:33 PM   #3
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Yay! What a great christmas present for both you and Sophie! Congrats on graduating from helmet therapy :)
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Zachary Joseph Marquez 9/4/02 - no cranio
Alexander Michael Marquez 9/2/08 - metopic cranio
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Old 12-21-2009, 07:39 PM   #4
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Oopsie! I started another thread without seeimg yours! Big duh from me!
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Old 12-21-2009, 07:57 PM   #5
Wyatt's Mom
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YAY!!! That is so exciting! Congratulations!!!
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Proud mommy of:
Logan - Jan '06 No Cranio
Wyatt - April '07 Metopic & Sagittal - Surgery at BC Children's Hospital Feb 27th, 2008
Cooper - Sept '09 currently have some concerns with his metopic suture, we've seen a neurosurgeon but are waiting and watching



View Wyatt's Story: http://www.craniokids.org/support/showthread.php?t=2607

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Old 12-21-2009, 08:37 PM   #6
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Let's see what fun characters I can find to celebrate....:dancing du That should sum it up!!!
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Nicholas - born 3/4/09. Sagittal Synostosis. Posterior CVR 9/15/09 with Dr. Fearon and Dr. Sacco - Medical City Dallas.
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Old 12-21-2009, 08:47 PM   #7
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What great news!!
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Mom to Noah and my cranio kid Fiona...Metopic CVR/FOA 9-26-07 at The Hospital for sick children in Toronto with Dr. Phillips and Dr. Kulkarni.
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Old 12-21-2009, 08:57 PM   #8
dannlark
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Yup, yup!!! Dancing Dude for you!!!! YAY!!!!!!




Congratulations!!!!!
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Aidan 9/8/2000
Camden 7/29/2003
Ian 7/29/2007 - Upper end "Mild" metopic. Surgery August 27th, 2008, Dr. Fearon, Medical City Dallas.

We're on the other side!!!

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Old 12-21-2009, 10:44 PM   #9
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WooHoo! Great news!
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http://www.onetruemedia.com/shared?p...edium=text_url


http://www.craniokids.org/support/showthread.php?t=4637

Andrew - born 8/11/07 (Metopic, CVR surgery completed on 6/18/08 at U of M)
Cheyenne Rose - born 4/18/10 with a patent urachus. Surgery at William Beaumont Hospital in Royal Oak, MI on 4/19/10.
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