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| Helmet Therapy For tips and questions about helmet therapy. |
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12-11-2009, 03:00 PM
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#1 |
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Mom to Anessa and Abram
Join Date: Jun 2009
Location: WV
Age: 29
Posts: 54
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Best early Christmas gift ever
I took Abey back to our ortho today for a f/u with his helmet. He is now 2 1/2 months post op and doing wonderfully. The last time we were in (3 weeks ago) he told me that he would like to see some change in the symmetry of Abe's head. There was a 5 mm difference b/t from the back of rt of of his head to over his left eye and vice versa. Well I took him in today and HE'S COMPLETELY SYMMETRICAL!!!!!!!!!!!!!!
 I'm just amazed it happened so fast. I was thinking it would take a while, if it ever would happen. Most of his lumps and bumps are gone now too! This has been the best early Christmas gift I could have ever recieved. On a side note, he will continue to wear his helmet until atleast Feb when we follow up with our CFS. Had to share the good news with you guys!!!! I'm so happy I'm crying, imagine that! 
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 Alicia Anessa Corinne - 1-11-08 (no cranio) Abram Alexander 6-20-09-fused sagittal suture - CVR 9/21/09 with Drs. Horswell and Mazagri We're on the other side!!!!!"How much of human life is lost in waiting"~Emerson
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12-11-2009, 03:02 PM
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#2 |
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We're on the other side!!
Join Date: May 2008
Location: Los Angeles, CA
Age: 43
Posts: 7,142
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WOO HOOOOOOO!!!! Way to go Abram!!!! And Momma, such great news! I agree, BEST present EVER!!!!
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Larkin Mom to 3 boys:  Aidan 9/8/2000 Camden 7/29/2003 Ian 7/29/2007 - Upper end "Mild" metopic. Surgery August 27th, 2008, Dr. Fearon, Medical City Dallas. We're on the other side!!!  Our CaringBridge link: http://www.caringbridge.org/visit/ianrodriguez 
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12-11-2009, 04:03 PM
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#3 |
Join Date: Mar 2009
Location: Columbia, Missouri
Age: 28
Posts: 2,581
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Wonderful!!! I'm so happy you are seeing positive changes. Yippee!!
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Tessa mom to Sophie - Endo surgery 4/16/09 and Helmet Grad 12/21/09 - St. Louis Children's |
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12-11-2009, 04:06 PM
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#4 |
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lovin' my lambdoid cutie boy!
Join Date: Sep 2008
Location: Greater Seattle
Posts: 1,374
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Great news!! Merry Christmas Momma!!
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Kristin, Momma of two rambunctious cuties  :Lucy born 3/05 "failure to thrive"- negative percentile on growth chart for weight 3/06 to 3/08 Xander born 3/08 Left Lambdoid Synostosis and Chiari Malformation- Posterior CVR Surgery 2/09 w/ Dr Fearon and Dr Sacco at Medical City Hospital Dallas, TX (fought insurance and won in network gap exception) rant rant rant.... |
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12-11-2009, 04:35 PM
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#5 |
Join Date: Mar 2008
Location: Mesa Arizona
Age: 41
Posts: 1,976
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Congratulations. That is wonderful news.
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Monica and Tony Charlie - 8/13/99 Lucy - 2/27/02 Alexander - 4/22/05 Florence - 11/26/07 (metopic - surgery on April 9, 2008)  www.metopicflorence.blogspot.com www.azhorns.blogspot.com |
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12-11-2009, 04:37 PM
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#6 |
Join Date: Feb 2009
Location: Milwaukee, WI
Posts: 648
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That is wonderful news!!
Congrats and Merry Christmas to you and your family!
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Debbie Henry's Mom  Henry is 22 mos. old and had an early metopic suture and softspot closure. He is surgery free and under the care of Children's Milwaukee CFS. |
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12-12-2009, 07:52 AM
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#7 |
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Moderator
Join Date: May 2008
Location: Ireland
Age: 30
Posts: 3,543
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wonderful news!! xxx
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 Chloe, Mum to 3 beautiful children- Aaron 12/2/02 Joey 5/3/06 Zara 16/12/07 our little princess-right unicoronal. Surgery 29th April 2009. Great Ormond Street Hospital http://www.onetruemedia.com/shared?<...<br /> <br /> |
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12-12-2009, 06:05 PM
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#8 |
Join Date: May 2009
Location: Orlando, FL
Posts: 132
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Hooray!!! Almost helmet-free!!!
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Melanie
Before and After surgery photos  
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12-13-2009, 01:10 AM
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#9 |
Join Date: Mar 2009
Location: West Michigan
Posts: 279
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yayyyyyyyyyyy so very happy for your great news.
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http://www.craniokids.org/support/showthread.php?t=9222 little Addie Mae's surgeries March 2009 CVR Oct 2009 FOA April 2010 Chiari Malformation surgery & tethered spine surgery Fall 2010 another CVR expected |
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12-13-2009, 10:30 PM
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#10 |
Join Date: Sep 2009
Location: Germantown, MD
Posts: 113
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Congrats!!! Merry Christmas!!!
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Jean Mama to Jillian Alexis Born on 6/29/09 Diagnosed with Sagittal Craniosynostosis 9/14/09 Endoscopic surgery 9/28/09 Started helmet therapy 10/7/09 We are on the other side!
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