Probably Calina's last decoration... - Page 2

Sophia's_mom · 02-03-2010, 12:42 PM

She looks amazing! WOW!

I see the dent, was there padding back there on her helmet? We had an issue the first week in the helmet some padding caused a dent on her temples but they took the padding out and one week later the dent was gone, but I didn't think she had extra padding on the sides of Calina's? Any feedback on what that is or why? I bet she'd never notice it and no one other than a cranio mom or dad would either.

CalinaLily · 02-03-2010, 02:19 PM

Definitely no padding back there... that's the area we're trying to get to grow. Just seems to be lagging behind in that one spot. They told us it's normal, but having the "void" in the helmet there should pop it out eventually... dunno!

jsr1220 · 02-04-2010, 01:00 AM

She is SO cute! I love what you did with the helmet!

Mena · 02-04-2010, 01:32 PM

hi melanie....my daughter audrey had the same issue with a small spot of her head was still flat after wearing the helmet. i brought it to the orthotist, pediatrician and neurosurgeon's attention and each one said that it would pop out over time, even once she was out of the helmet. she's been out of the helmet for nine months and the spot is no longer there....they were right...her head continues to round itself out! give it time...you'll be surprised!
by the way love the design!!

danni174 · 02-04-2010, 10:10 PM

What a beautiful daughter you have!!!

CalinaLily · 02-06-2010, 09:53 PM

Thank you guys so much. I really appreciate you all being here!!

JillysMama · 03-26-2010, 11:00 PM

She looks fantastic and I think her head has a very nice roundness to it. They keep warning me that as soon as we take off the helmet for good this kiddos are going to have some relapse. Calina looks like she has plenty of room to relapse after the helmet is taken off. I'm really happy for you guys!

CalinaLily · 03-27-2010, 12:53 PM

It's annoying because I keep getting really mixed messages about the degree of regression. Seems like they just don't know what will happen when she's done with the helmet (April 5th, by the way!) Her surgeon seems to think it'll be only a couple of percentage points at the worst, but I heard from my orthotist that Dr. Jimenez just upped his protocol from 12 months of helmet therapy to 18 months, because his patients were regressing more than he wanted. So, who knows? I'll just be happy to be done with it. Her head looks good enough that if she heads back longways, she'll still look great, so I'm happy.

mommy22 · 04-13-2010, 04:33 PM

Your daughters head looks great. So is she done??

CalinaLily · 04-20-2010, 09:53 PM

Yup, DONE! :)

02-03-2010, 12:42 PM	#11
Sophia's_mom Join Date: Mar 2009 Location: Columbia, Missouri Age: 28 Posts: 2,582	She looks amazing! WOW! I see the dent, was there padding back there on her helmet? We had an issue the first week in the helmet some padding caused a dent on her temples but they took the padding out and one week later the dent was gone, but I didn't think she had extra padding on the sides of Calina's? Any feedback on what that is or why? I bet she'd never notice it and no one other than a cranio mom or dad would either. __________________ Tessa mom to Sophie - Endo surgery 4/16/09 and Helmet Grad 12/21/09 - St. Louis Children's

02-03-2010, 02:19 PM	#12
CalinaLily Join Date: May 2009 Location: Orlando, FL Posts: 132	Definitely no padding back there... that's the area we're trying to get to grow. Just seems to be lagging behind in that one spot. They told us it's normal, but having the "void" in the helmet there should pop it out eventually... dunno! __________________ Melanie Calina Lily born 3/19/09 Sagittal Synostosis - diagnosed at birth Endoscopic surgery with Dr. Johnson & Dr. Ruiz 6/17/09 StarLight helmet therapy with Star Cranial started 7/13/09 & graduated 4/5/10 My Mommy Blog - including our cranio journey Before and After surgery photos

02-04-2010, 01:00 AM	#13
jsr1220 Caleb_&_Noah's_Mommy Join Date: Jan 2010 Location: Texas Posts: 118	She is SO cute! I love what you did with the helmet! __________________ JANELLA Mom to Caleb 6/14/06 (no cranio) and Noah 8/12/09 (metopic))

02-04-2010, 01:32 PM	#14
Mena Join Date: Mar 2009 Location: Grosse Pointe Park, MI Age: 36 Posts: 24	hi melanie....my daughter audrey had the same issue with a small spot of her head was still flat after wearing the helmet. i brought it to the orthotist, pediatrician and neurosurgeon's attention and each one said that it would pop out over time, even once she was out of the helmet. she's been out of the helmet for nine months and the spot is no longer there....they were right...her head continues to round itself out! give it time...you'll be surprised! by the way love the design!! __________________ Mena Mommy to Audrey (10-06-08) sagittal synostosis (surgery 01-08-09) "on the other side"

02-04-2010, 10:10 PM	#15
danni174 Join Date: May 2009 Location: Australia Age: 37 Posts: 1,271	What a beautiful daughter you have!!! __________________ DANIELLE- Proud Mum of Bianca, Kayla & Adrian ADRIAN JOHN Born 23rd August, 2008 with severe Metopic Cranio(Trigoncephlay) and extra little thumb on his left hand Surgery 28th April, 2009

02-06-2010, 09:53 PM	#16
CalinaLily Join Date: May 2009 Location: Orlando, FL Posts: 132	Thanks! Thank you guys so much. I really appreciate you all being here!! __________________ Melanie Calina Lily born 3/19/09 Sagittal Synostosis - diagnosed at birth Endoscopic surgery with Dr. Johnson & Dr. Ruiz 6/17/09 StarLight helmet therapy with Star Cranial started 7/13/09 & graduated 4/5/10 My Mommy Blog - including our cranio journey Before and After surgery photos

03-26-2010, 11:00 PM	#17
JillysMama Join Date: Sep 2009 Location: Germantown, MD Posts: 113	She looks fantastic and I think her head has a very nice roundness to it. They keep warning me that as soon as we take off the helmet for good this kiddos are going to have some relapse. Calina looks like she has plenty of room to relapse after the helmet is taken off. I'm really happy for you guys! __________________ Jean Mama to Jillian Alexis Born on 6/29/09 Diagnosed with Sagittal Craniosynostosis 9/14/09 Endoscopic surgery 9/28/09 Started helmet therapy 10/7/09 We are on the other side!

03-27-2010, 12:53 PM	#18
CalinaLily Join Date: May 2009 Location: Orlando, FL Posts: 132	It's annoying because I keep getting really mixed messages about the degree of regression. Seems like they just don't know what will happen when she's done with the helmet (April 5th, by the way!) Her surgeon seems to think it'll be only a couple of percentage points at the worst, but I heard from my orthotist that Dr. Jimenez just upped his protocol from 12 months of helmet therapy to 18 months, because his patients were regressing more than he wanted. So, who knows? I'll just be happy to be done with it. Her head looks good enough that if she heads back longways, she'll still look great, so I'm happy. __________________ Melanie Calina Lily born 3/19/09 Sagittal Synostosis - diagnosed at birth Endoscopic surgery with Dr. Johnson & Dr. Ruiz 6/17/09 StarLight helmet therapy with Star Cranial started 7/13/09 & graduated 4/5/10 My Mommy Blog - including our cranio journey Before and After surgery photos

04-13-2010, 04:33 PM	#19
mommy22 Join Date: Jun 2009 Posts: 11	Your daughters head looks great. So is she done??

04-20-2010, 09:53 PM	#20
CalinaLily Join Date: May 2009 Location: Orlando, FL Posts: 132	Yup, DONE! :) __________________ Melanie Calina Lily born 3/19/09 Sagittal Synostosis - diagnosed at birth Endoscopic surgery with Dr. Johnson & Dr. Ruiz 6/17/09 StarLight helmet therapy with Star Cranial started 7/13/09 & graduated 4/5/10 My Mommy Blog - including our cranio journey Before and After surgery photos

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